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blueshoefarm at gmail dot com.... and that would be how to reach me

Monday, November 7, 2011

Meet only person who has ever hollered YAY about a head tumor

A week ago Rose had her first debate competition. I was a judge. It was crammed full of high schoolers from Washington, noisy, action-packed. I was there 12 hours and after two hours could not be in the building without sunglasses. It is as if my brain was screaming, and when I put sunglasses on it quieted down. Other judges non-stop conversations put me on edge also.
I went out to the car, and silence, a couple times to maintain. Sunday, I got bouts of vertigo. That was one of the symptoms of my pre-stroke so I was concerned. My usual behavior (pre-stroke) was to push onward, but on Sunday night I knew to take symptoms seriously and go to the hospital. I waited until I dropped off the kids at school on Monday and hopped on a ferry to my neurologists hospital. (Sidebar: If there was a true emergency, I would call 911. But not without alot of reservations. Last time I called was for a different stroke symptom (my low low bloodpressure skyrocketed to 200/120), they did an EKG in my driveway, the first thing they said to me was "Have I been drinking" and the fellow ACTUALLY BLUSHED when he had to put on the sticky heart things when I lifted my shirt. I think your medical professionals should have enough experience to know they are there to do a job, not get a date. They also said that the hospital would not do anything... I've been there, and agree.) Back to my Seattle hospital...
At my docs hospital I was whizzed through blood tests, x-rays and MRI in less than an hour. My neurologist was immediately contacted.
After a while, the emergency room doctor came in and said "I think we know why you are dizzy, you have a brain tumor." I kid you not, I yelled YAY! Because a tumor I (think) I can deal with. It is finite, there is a beginning and an end to it, and protocol of how to handle it. The stroke already has me dealing with updating my will and the unpredictability of life. I have no fear left for the tumor... I think it's been all used up on the stroke.
The tumor gives a valid reason I am having these stroke-like symptoms. It also shows the doctors I am not making this shit up. I don't know how patients can deal... with PT's, doctors, that hear symptom after symptom which is repetitive for them and normal... but first timer patients are traumatized . I have been on tenterhooks since having a stroke in July. Since this is the first time in my life my bevy of doctors did not look me in the eye and say "You will be fine," I take that to mean (note my usual exaggeration) "You are one step away from the grave." At no time in my zero to age 46 medical visits has a doctor not said I will be fine, now they cannot, because they don't know. The stroke has put a wrinkle in my long term lifespan, my projected end date has just moved closer according to insurance statistics. I don't like that, but as every single solitary person on this planet will face the same thing at some point, it is not something I can argue with. I am learning to look at things differently... a paradigm shift of sorts.
For the record, it is not in my brain, but in my head.... a common tumor, slow growing, usually benign, not the type to move into the lymphatic system. I will have to do something, either take it out or gamma knife it. I was somewhat overwhelmed with stroke knowledge... since I know nothing about them, now I am in a whole new territory. Ah well, at least I like learning new things.

5 comments:

DirtyKSmama said...

Well YAY to you for going to the hospital right away!
Holy crap, you don't need to worry about life getting dull and boring, do you? It's amazing how things that concerned you before are now trivial. Life as you know and perceive it, changed for you to conquer anew. But you seem to be the right woman for the challenge. You'll do it.

Linda said...

I am sorry to hear that things have gotten more complicated.

I hope you get some resolution with the tumor soon and hopefully you will feel a whole lot better! It is such a relief to have answers to health questions, because then there is something you try to work with.

Blue Shoe Farm said...

Nikki, thank you so much for your words. They are wonderful for me to read.

Linda- It is much easier to work with something that is known! And I keep thinking of the bad result that could happen, I should do what you mentioned and think of how great I will feel when I get this taken care of-- I can think "glass half full, not half empty".

Karen Anne said...

The tumor is responsible for everything? I can understand the relief at finally identifying the cause. Good thoughts to getting this all fixed and being as good as new.

(I had a substitute cardiologist blush when attaching those sticky heart things.)

Blue Shoe Farm said...

Karen Anne,
Glad to hear of another blushing story, although sorry you had to go through it. I really tried to pin reason for the stroke on my tumor, both neuro docs said nope. They are totally different beasts. I have to look at the good side, they would have not found the tumor if I hadn't had a stroke!

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